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You are here: Home / News / Day Three Post-Baclofen

Day Three Post-Baclofen

May 3, 2012 by Ryan's Rally LLC 26 Comments

Ryan did it! It appears he doesn’t need the baclofen and is free of it for three full days now. With the exception of the first night when his respiration was up — that I’m inclined to attribute to his UTI — I didn’t notice any negative effects. Not one. By now even trace amounts of baclofen are cleared from the catheter. 

I was particularly impressed with his therapies yesterday. He did exceedingly well. It was clearly his best session yet on the RT300 FES. Not only did he go a full thirty minutes under his own muscle-power (involuntarily), it took a over sixteen minutes before he needed 100% of the stimulation to do it. In other words, he required less stimulation to do the same amount of work. His muscles are getting stronger! I again want to thank everyone who gave their own money to get this equipment for him.

I’m really excited to see how he does with his twice-a-week neuro-feedback session with IBRF later this morning. The last session on Tuesday was encouraging. His delta and theta wave (sleep waves) were much lower, meaning he was more alert (but not necessarily aware). I’m hoping that this was not a freak occurrence and he can replicate it going forward.

The weekend will be a busy one for the family, as I will be flying solo here at home as Sue heads to WVU to help Kari get everything in order before heading home for the summer. I can’t wait for her to be back.

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Filed Under: News

Comments

  1. Pattie says

    May 4, 2012 at 4:36 PM

    Yay!!!!!! Great news- enjoy your family!!!!

    Reply
  2. Jenn says

    May 4, 2012 at 3:30 PM

    Great start to hopefully an uneventful weekend..safe travels for Sue and Kari!!

    Reply
  3. Mary Condy Mitchell via Facebook says

    May 4, 2012 at 6:14 AM

    Yes! Way to go Ryan…..thanks for the update Ken.

    Reply
  4. Will says

    May 3, 2012 at 2:43 PM

    Prayers are being answered. Great news. My prayers continue for Ryan’s healing.

    Reply
  5. Jo Hobbs via Facebook says

    May 3, 2012 at 1:45 PM

    More good news! Glory be! Pray without ceasing — that’s the ticket!

    Reply
  6. Keri Dezell says

    May 3, 2012 at 1:34 PM

    YIPPEEEEEY YAHOOOOEEEY!!!!!!!!!!!!!!!!!!!

    No more Baclofen which should allow for continued PROGRESS for RYAN!!!
    Weather that allows for “GRILLIN and CHILLIN” on a beautiful new patio providing you all with a much needed change of scenery !!
    Kari’s coming home!!

    I pray that this is marks the beginning of more good news to come!

    With love and in prayer, always, forever and until.
    Keri, My Frankie and Family

    Reply
  7. Carla Liberty says

    May 3, 2012 at 1:21 PM

    Doing my happy dance!!!! WTG RY!

    Reply
  8. Andrew Polzin via Facebook says

    May 3, 2012 at 1:08 PM

    Very awesome!

    Reply
  9. jane says

    May 3, 2012 at 12:38 PM

    Fantastic!!!!!!

    Reply
  10. Kathryn Beggs Howlett via Facebook says

    May 3, 2012 at 12:12 PM

    great news!

    Reply
  11. Sam says

    May 3, 2012 at 11:40 AM

    WONDERFUL!!!!!!!!

    Reply
  12. Paula says

    May 3, 2012 at 10:34 AM

    Go Ken, go Ryan!!! The investment in the RES equipment is paying off in a big way!! Thank you for keeping us updated on the neuro feedback too, it is very interesting. Wishing you a good day and praying for you without ceasing.
    Love & hugs, Paula

    Reply
  13. Bonnie says

    May 3, 2012 at 10:19 AM

    Yipeeeee! Great news!

    Reply
  14. Christy says

    May 3, 2012 at 10:18 AM

    I don’t post on here often, but I read almost everyday. Today I just wanted to say how great an achievement this is for Ryan and your family! Awesome news!

    Reply
  15. Colleen says

    May 3, 2012 at 10:06 AM

    That is terrific. What a huge accomplishment for you and Ryan. Hoping for more good news after your session with IBRF. I didn’t know you had bi-weeknight sessions with them. Hope you have a great day!

    Reply
  16. Ryan's Rally: We Got This via Facebook says

    May 3, 2012 at 9:58 AM

    As an update to today’s post, Ryan went 32 minutes before he needed 100% stimulation for his muscles to move the peddles. He completed the entire hour on his own again! Just incredible.

    Reply
    • Gail Doyle says

      May 3, 2012 at 7:22 PM

      Ken,Ryan is getting there !!! Go Ryan. We are all behind you and thinking of you always. Good to see Ms.Blase’ back.Thanks for keeping us posted ,Ken Love gail

      Reply
  17. Ms. Blasé says

    May 3, 2012 at 9:34 AM

    100% awesomeness 🙂

    Reply
    • ryansrally.org says

      May 3, 2012 at 9:56 AM

      Yay! You’re back!

      Reply
  18. John Maletta says

    May 3, 2012 at 9:18 AM

    Terrific!!!

    Reply
  19. Cheryl O. says

    May 3, 2012 at 9:16 AM

    So glad this all went down so smoothly. Great news!

    Reply
  20. Jo says

    May 3, 2012 at 9:02 AM

    Thank God! I know the waiting has been really difficult for you and your family especially, but for all of us here as well. Prayers for continued progress into awareness. And, too, for quick resolution of the UTI.

    Ryan’s benefits from the RT 300 FES is thanks enough. Grow strong, Ryan! Always here for you. 🙂 Have a wonderful day. Love and prayers.

    Reply
  21. Feisty NYY Fan says

    May 3, 2012 at 9:00 AM

    What a happy post, full of good news and hope! Thanks for sharing!

    Reply
  22. Gail Doyle says

    May 3, 2012 at 8:57 AM

    Ken, Very exciting news!!Hoping the session goes well with IBRF.You all have done such a great job helping Ryan to progress and he will. Now to get rid of UTI. Ryan is so strong physically because of you, and hoping and praying awareness and alertness will be next. My thoughts to all and hope Sue has a safe ride picking up Kari… Love gail

    Reply
  23. Rita Caporicci Hoop via Facebook says

    May 3, 2012 at 8:52 AM

    Woohoo! Go, Ryan!! You’re doing it, buddy <3

    Reply
  24. Patti Carroll Bottcher via Facebook says

    May 3, 2012 at 8:52 AM

    Great news all the way around!

    Reply

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