Ryan did it! It appears he doesn’t need the baclofen and is free of it for three full days now. With the exception of the first night when his respiration was up — that I’m inclined to attribute to his UTI — I didn’t notice any negative effects. Not one. By now even trace amounts of baclofen are cleared from the catheter.
I was particularly impressed with his therapies yesterday. He did exceedingly well. It was clearly his best session yet on the RT300 FES. Not only did he go a full thirty minutes under his own muscle-power (involuntarily), it took a over sixteen minutes before he needed 100% of the stimulation to do it. In other words, he required less stimulation to do the same amount of work. His muscles are getting stronger! I again want to thank everyone who gave their own money to get this equipment for him.
I’m really excited to see how he does with his twice-a-week neuro-feedback session with IBRF later this morning. The last session on Tuesday was encouraging. His delta and theta wave (sleep waves) were much lower, meaning he was more alert (but not necessarily aware). I’m hoping that this was not a freak occurrence and he can replicate it going forward.
The weekend will be a busy one for the family, as I will be flying solo here at home as Sue heads to WVU to help Kari get everything in order before heading home for the summer. I can’t wait for her to be back.
Yay!!!!!! Great news- enjoy your family!!!!
Great start to hopefully an uneventful weekend..safe travels for Sue and Kari!!
Mary Condy Mitchell via Facebook says
Yes! Way to go Ryan…..thanks for the update Ken.
Prayers are being answered. Great news. My prayers continue for Ryan’s healing.
Jo Hobbs via Facebook says
More good news! Glory be! Pray without ceasing — that’s the ticket!
Keri Dezell says
No more Baclofen which should allow for continued PROGRESS for RYAN!!!
Weather that allows for “GRILLIN and CHILLIN” on a beautiful new patio providing you all with a much needed change of scenery !!
Kari’s coming home!!
I pray that this is marks the beginning of more good news to come!
With love and in prayer, always, forever and until.
Keri, My Frankie and Family
Carla Liberty says
Doing my happy dance!!!! WTG RY!
Andrew Polzin via Facebook says
Kathryn Beggs Howlett via Facebook says
Go Ken, go Ryan!!! The investment in the RES equipment is paying off in a big way!! Thank you for keeping us updated on the neuro feedback too, it is very interesting. Wishing you a good day and praying for you without ceasing.
Love & hugs, Paula
Yipeeeee! Great news!
I don’t post on here often, but I read almost everyday. Today I just wanted to say how great an achievement this is for Ryan and your family! Awesome news!
That is terrific. What a huge accomplishment for you and Ryan. Hoping for more good news after your session with IBRF. I didn’t know you had bi-weeknight sessions with them. Hope you have a great day!
Ryan's Rally: We Got This via Facebook says
As an update to today’s post, Ryan went 32 minutes before he needed 100% stimulation for his muscles to move the peddles. He completed the entire hour on his own again! Just incredible.
Gail Doyle says
Ken,Ryan is getting there !!! Go Ryan. We are all behind you and thinking of you always. Good to see Ms.Blase’ back.Thanks for keeping us posted ,Ken Love gail
Ms. Blasé says
100% awesomeness 🙂
Yay! You’re back!
John Maletta says
Cheryl O. says
So glad this all went down so smoothly. Great news!
Thank God! I know the waiting has been really difficult for you and your family especially, but for all of us here as well. Prayers for continued progress into awareness. And, too, for quick resolution of the UTI.
Ryan’s benefits from the RT 300 FES is thanks enough. Grow strong, Ryan! Always here for you. 🙂 Have a wonderful day. Love and prayers.
Feisty NYY Fan says
What a happy post, full of good news and hope! Thanks for sharing!
Gail Doyle says
Ken, Very exciting news!!Hoping the session goes well with IBRF.You all have done such a great job helping Ryan to progress and he will. Now to get rid of UTI. Ryan is so strong physically because of you, and hoping and praying awareness and alertness will be next. My thoughts to all and hope Sue has a safe ride picking up Kari… Love gail
Rita Caporicci Hoop via Facebook says
Woohoo! Go, Ryan!! You’re doing it, buddy <3
Patti Carroll Bottcher via Facebook says
Great news all the way around!