I’m not really sure what might be more difficult than getting a team of
high-profile any doctors to agree on a mutual time for a meeting. But, Sue did it. By Pete, she did! We will be holding a Skype conference call with the IBRF (International Brain Research Foundation) medical team this upcoming Tuesday afternoon.
So, this means a good part of today will be occupied with putting together an agenda of items we wish to discuss. We actually keep somewhat of a running list so the time today is spent filling in the detail. It’s a mentally exhausting task. By tonight neither of us will even want to think. Looks like a great night to watch “Swamp People”.
If your interested, I will share this agenda (most of it, anyhow) in a post tomorrow or Monday. Let me know and I’ll see what I can do.
For me, it seems like we’re stuck in a “holding pattern” with Ryan’s treatment. The ole’ “hurry up and wait” (I hate that expression). This might certainly be by intent, but it’s worthwhile pushing the issue a bit. True, I get impatient — always wanting to advance the ball on every down — and I need good reason why this might be the best approach. It’s in my make-up to ask “what next?”, even outside Ryan’s care. Although with Ryan’s care I am relentless.
- IBRF Conference Call Tomorrow (ryansrally.org)
- Kari Home Safely. IBRF Call Held. BWF Event Tomorrow. (ryansrally.org)
- 17 Months. IBRF Visiting. (rallyforryan.wordpress.com)
- IBRF to Visit Thursday (rallyforryan.wordpress.com)
YES. I AM interested in seeing the list of the issues to be discussed/discussed on the Skype Conference Call. (if you have not posted tomorrow…I am behind reading your blogs…)
PLEASE POST LIST, or email me.
Gail Doyle says
Paula ,If I ever needed an advocate ,you are the best !!!,Love ya Gail
And now for a quick public service reminder: If you would like to help Ryan by ordering a supply of his vitamin supplements or other items, please see this link: https://ryansrally.org/ryans-list/
Also, there will be “We Got This” T shirts for sale at the carwash on June 25th.
And — Ruby Tuesdays is the place to be for lunch and/or Dinner on Tuesdays!! Their salad bar is the perfect choice for light and fresh summer meals. Don’t forget to write Ryan’s name on your check!! Thank you!!!
John Maletta says
Paula, I’ve been trying to get hold of five of the “We Got This” t-shirts for our the guys participating in the Ride For Ryan event. I need two large and three XLs. Any chance you have those for sale?
Jane Hofmann says
I can help you with the t-shirts. Send me a message at email@example.com
Gail Doyle says
Ken,Praises to Sue for having arranged this call with everyone involved .Hopefully they will have an agenda for Ryan and you,,I would be very interested in knowing the things you will discuss and how all will effect Ryan on his way to healing ..Whatever you can tell us would be great. Keep up the wonderful work you’re doing with Ryan .A nice weekend to you all ,
Hello Ken, I’m glad you and Sue will be having this call with the IBRF. Hopefully they will be giving you an idea for the timeline for the next phase of Ryan’s treatment program. I would be very interested in seeing your agenda for the meeting. Knowing you, it will be very thorough. In the meantime, it is so encouraging to know Ryan’s eyes are showing improvement and that he is so healthy. You are doing an extraordinary job taking care of Ryan, Ken. Really — you are amazing. Hugs & prayers, Paula