Ryan did it! It appears he doesn’t need the baclofen and is free of it for three full days now. With the exception of the first night when his respiration was up — that I’m inclined to attribute to his UTI — I didn’t notice any negative effects. Not one. By now even trace amounts […]
Day Two Post-Baclofen
Ryan is now a full two days post-baclofen. Last night was much better, as all vital signs were normal and he seemed comfortable. I’m not sure what caused the increase in respiration the night before… and probably never will. I’m still concerned that the antibiotic isn’t knocking out the urinary tract infection. Granted, he is […]
One Day Post Baclofen
I wish I could give you a definitive assessment of how Ryan is tolerating the baclofen reduction (to zero). It’s a tough call now and I simply don’t know what to make of it. For one, his respiration rate was up overnight to thirty per minute, nearly double his baseline. It did come down to […]
Baclofen Stopped!
It just happened! Ryan’s baclofen rate is now at zero. Mark the date. April 30, 2012 at 11:23 am. Can you believe it?
Today: Scary and Exciting
Today is both scary and exciting for the same reason. It is the day that Ryan is completely weaned from baclofen; a drug used as a skeletal muscle relaxer and an anti-spasticity agent. For Ryan, the baclofen was delivered in the most efficient way possible, via the spinal column. This delivery doesn’t cross the blood-brain […]