Ryan didn’t get much rest last night. He was having coughing fits on-and-off. It’s nothing I’m concerned about, since it wasn’t originating from the lungs. To me, it sounded like the type of cough associated with allergies. You know, that tickle in the throat sort of cough. His eyes are more red than normal too. […]
Something to Look Forward to
I’m grateful for the handful of unseasonably warm days we had last month. It allowed Ryan to spend some time on the patio soaking up the sun. He felt the breeze on his face and the sounds of the outdoors, like geese on the lake and traffic on the road. Once I took him outside […]
Weekly Update
I guess it’s becoming a weekend tradition where I put out a summary of what’s going on. People tell me they like this and it certainly works for me. Baclofen. Ryan tolerated the last reduction earlier this week well. I’m breathing a hell of a lot easier now that he is beyond the seventy-two hour […]
Bone Density Results
Yesterday started out rough. Then… it got rougher. We were told the results of Ryan’s dexascan (bone density test). Last year at this time we learned Ryan had osteopenia. This means the bones are not normal, but haven’t progressed to osteoporosis. We made a ton of changes to his diet (mainly calcium) and therapy. I […]
When Does it Ever End?
The expression about March coming in like a lion didn’t disappoint. No siree, Bob. For the sake of (faking) organization, I’ll begin with what I perceive is the least annoying and finish with what is perhaps a matter of life-or-death.


