Starting this week, it’s going to get busy for Ryan and myself. We have several appointments lined-up. Unfortunately, most require taking Ryan out. Today’s post is more informative than entertaining. My intent is to get you caught-up on what’s going on.
I guess the best way to do this is to just list it out in chronological order:
December 12, Sleep Study. In October 2011, we took Ryan to a sleep diagnostics center. He will again spend a night hooked-up to an EEG, with at least two dozen wires attached to his head, to measure his brain waves throughout the night. Our hope is he will “sleep” in a way that is similar to how we do. Meaning, he will go through cycles and achieve REM sleep. He did meet this, to some degree, during the first study. It takes about ten days until we get the report.
- December 17, Some exciting news on this day. Consider this a teaser. I would expect media coverage as a company helps us out in a big way.
- December 19, Urologist and (possibly) urodynamics. This was rescheduled from last month. We will take Ryan to Georgetown University to have a battery of tests — called urodynamics — performed to assess his bladder, kidney, and urinary functions and characteristics. That is, provided he doesn’t develop a UTI. We already know his urine is contaminated (bacteria are colonized). A culture we sent out the week of Thanksgiving confirmed it, but an infection hasn’t yet developed.
- December 21, Depositions. Attorneys from both sides are coming to Ashburn to take my family’s depositions for the civil suit. I expect each of us will spend four to six hours answering questions. I haven’t heard the location, but it will probably be at a local library or some attorney’s office.
- December 22, Orthopedic Clinic. This is being held at Children’s Hospital in Washington, D.C. The idea here is to measure his bone health and develop a plan to improve it. One test, called a DEXA scan, most interests me because it measures bone density. This will give us an indication if Ryan’s bones are seeing the benefit of the electro-stimulation cycling.
- January 16, qEEG. Finally, one appointment we don’t have to take him out to have done! The international Brain Research Foundation (IBRF) medical team is coming to our home.
Once we make it through all those appointments, I’ll begin working on some big plans I have for Ryan’s Rally that I’d like to have in place before the summer rolls around. The short of it is, I believe I am in a position to help society and I have a deep yearning to take our brand into new areas. Sure, the primary goal is always to help Ryan. Or, as I think of it, “improving his situation”. But, we have so much more to offer! My first initiative will be to get some free or inexpensive office space (near my home) where Ryan and I can “go to work” everyday and be available to and for the public.
Any guesses where I’m going with this? I encourage you to try to figure it out, because you will likely come up with ideas that I hadn’t thought.