Ryan achieved a remarkable milestone last week, but he continues to be afflicted with a chronic condition. One that seems impossible to resolve (but I’ll keep trying). On the “things to look forward to” list our family will all be together and a huge fundraising event is on tap to close out the week.
- Baclofen. This past Monday at 11:23 am Ryan completely stopped the baclofen infusion. It was the culmination of ten months of step-down dosages. Ryan tolerated each one well, including the last. If he continues to stay relaxed and comfortable then we’ll have the implanted pump removed in three to six months.
- MRI. Later this week Ryan will go out for more imaging to better identify the placement of his Celect IVC filter. There is concern that this filter, strictly placed to capture any blood clots from the legs that might form and break free from reaching the heart, is that it shifted and could puncture the inferior vena cava; the large vein that is just above the intersection of the leg veins. The thought is, if we can get the filter out then we’ll do it since his is no longer at much risk for clotting.
- UTI. We are having a hell of a time getting this latest urinary tract infection knocked-out. Home urine dips continue to show the presence of leukocytes and nitrites; a sure sign of infection. Beyond this, his urine has a foul odor that I recognize as the same bacteria. That’s right, I can actually identify the bacterial strain by it’s smell. What a gift… wee ha! Another urine culture went out yesterday to see if it’s the same bacteria or we’re dealing with something entirely different, but I don’t need that to know it’s the same. Results could be in as early as tomorrow.
- Kari. She comes home for summer recess from WVU today! I can’t wait. I’m planning on grilling-out a feast fit for a king (or Princess, in her case).
- Golf Event. One of the major fundraisers, the 2nd Annual Golf Tournament, is this upcoming Friday, hosted by the Greg Wells Team (RE/MAX). This event is huge in helping us offset the cost of Ryan’s care and treatment. Mr. Wells’ does this out of the goodness of his heart and because he was so touched by Ryan’s story. After the golfer’s come back to the Club House they, and anyone else who wants to attend, get treated with dinner and an auction. Let’s all hope for a sunny day!
- The Greg Wells Team Partners Up with Northern Virginia Real Estate Company to Host 2nd Annual Charity Golf Tournament (prweb.com)