Ryan did it! It appears he doesn’t need the baclofen and is free of it for three full days now. With the exception of the first night when his respiration was up — that I’m inclined to attribute to his UTI — I didn’t notice any negative effects. Not one. By now even trace amounts of baclofen are cleared from the catheter.
I was particularly impressed with his therapies yesterday. He did exceedingly well. It was clearly his best session yet on the RT300 FES. Not only did he go a full thirty minutes under his own muscle-power (involuntarily), it took a over sixteen minutes before he needed 100% of the stimulation to do it. In other words, he required less stimulation to do the same amount of work. His muscles are getting stronger! I again want to thank everyone who gave their own money to get this equipment for him.
I’m really excited to see how he does with his twice-a-week neuro-feedback session with IBRF later this morning. The last session on Tuesday was encouraging. His delta and theta wave (sleep waves) were much lower, meaning he was more alert (but not necessarily aware). I’m hoping that this was not a freak occurrence and he can replicate it going forward.
The weekend will be a busy one for the family, as I will be flying solo here at home as Sue heads to WVU to help Kari get everything in order before heading home for the summer. I can’t wait for her to be back.
- Day Two Post-Baclofen (ryansrally.org)