Yesterday was crazy busy. Especially in the morning. All morning, for goodness sake. You’ll soon read why.
- RT-300 FES Therapy. It’s here! Restorative Therapies delivered, set-up, and fitted it yesterday. Ryan did his first full session and adapted to it so quickly that it almost seemed like it is designed and built with him in mind. It’s beyond wonderful! So much so that I will put out a post dedicated to it next week. I’ll definitely include video of Ryan using it too. The targeted fundraiser to offset its cost has raised $4,500 ($3,165 from my fundraiser, and the rest from Briar Wood and Broad Run Lacrosse and a few other private donations). I will leave this fundraiser open for a bit longer in hopes of more donations. Our deepest thanks to all who have (and might) help us with this. It’s just what Ryan needs to build muscle, improve bone density, and give a cardiovascular workout. The motion and stimulation should help him relearn movement patterning too… if he has the capacity.
- Baclofen. The last scheduled reduction was missed because the doctor didn’t get the order in. It was rescheduled to Thursday, April 5 but the nurse will be in the area on Tuesday, April 3 (Sue’s Birthday!). We are taking the dosage down to 45 mcg (from roughly 60 mcg).
- Bed. Ryan’s bed was doing some odd things yesterday morning. I was on the phone with customer support for almost four hours straight trying to resolve it. Talk about being overwhelmed! I had to tend to Ryan (first priority) while carefully following technical support’s instructions for taking apart and diagnosing the cause At this very moment, the mechanical and electrical components are disassembled. We were getting close too, before we blew a fuse on the bed’s CPU. Everything came to a screeching halt and now I must wait for this tiny ceramic fuss to be delivered. UPDATE: The fuses arrived and I snapped them in. The bed is functional enough, but barely, to get us through the weekend. Then I can resume with technical support.
- Therapy Percussion Vest. This also arrived today. It provides another way to do chest percussion therapy to keep Ryan’s lungs clear by mobilizing secretions. This is a mobile unit, so it can be used anywhere there is a power supply. Ryan already gets this therapy at least four times a day. Twice while in bed overnight (the bed has this function) where he is basically lightly tossed around. Then twice during the day, where I cup my hands and “thump” his back between the shoulder blades and along his sides for twenty minutes. This new equipment will replace me! It’s more effective as well. I hope this helps my fingers and wrists heal a little.
- Urinary Tract Infection. Ryan will complete his heavy-duty course of antibiotic this week to treat the UTI. The good news is he is not showing any sign of infection, both clinically and by our home urine dips. When this is finished he will return to a low-dose antibiotic. One week following we need to send out his urine for another culture to make sure the bacteria doesn’t return. It’s a nasty one and the need to eradicate it is paramount.