Today will be a crazy busy day in a crazy busy week.
It’s already well underway with Ryan doing his first of two HBOT (Hyperbaric Oxygen Treatment) therapies. The instant he gets out Dr. Hinkle will be waiting on him to check his eyes. Right behind that is a remotely administered neurofeedback session with IBRF (International Brain Research Foundation). Finally, his baclofen reduction. Yikes!
The good news is those should all be done by early afternoon.
Somehow, and I’m not at all sure how, we’ll need to get all his other regular therapies in too. Oh, and on top of it, I need to find a way to get a urine sample over to Dr. Rodriguez (leukocytes are present again) for culture and another sample to UPS for overnight delivery. As the youngsters like to say, “FML”, which is text-speak for “F#*% My Life” for those who aren’t “wit’ it”. Note: As I was writing this Sue called me to say she already found someone to do this later today!
Specific to the baclofen reduction, the dosage is being taken from 80.1 mcg to 60 mcg. The next reduction, provided today’s goes well, will take him into the low- to mid-forties. At that level I have a decision. I can either step him down one last time (30 mcg or so) or completely stop the medication and see what happens. I’m leaving myself open to either. Again, it will all come down to my instincts.
I apologize for the short post today. As you know, the events of the day are a bit daunting.