Ryan’s baclofen rate was reduced yesterday just after one o’clock. So far he is showing neither negative nor positive reaction. I’ll be able to tell more as I put him through his therapies today. We did run into one small glitch. The rate was only reduced to 96.1 mcg and not to 90 mcg where I wanted. It had everything to do with the concentration level of the medicine. Taking it below 96 mcg would slow the pump to a near standstill.
This will be resolved on the next visit. The pump will be drained and refilled with a more diluted ratio. That means the pump can run faster, but effectively deliver a lower amount of baclofen. At the same time, I’d like to take the level down again. I’m thinking at least to 80 mcg. This is already scheduled for February 28th, dependent on how Ryan tolerates this latest reduction.
So, just doing some quick math in my head, Ryan is four reductions away from testing the elimination of baclofen altogether. This makes me think — if all goes well — that he might be off the medicine just before summer. I’ll keep the pump implanted for another three to six month just to make sure. Who knows, by the end of the year he might be free of the pump entirely.
In other breaking news, Ryan and I will have the complete run of the house today through Friday. Parents, lock up your daughters! Or, sadly in my case, grandparents, lock up your daughters! Anyhow, Sue will be away on business travel and this will give us boys the opportunity to run amok. I won’t make any guarantees, but we’ll try to keep out of trouble. Well, at least we won’t go looking for trouble.
In actuality, Ryan and I got an early jump on the day and I’m sure I’ll be worn out by evening. So, running amok will probably consist of eating a frozen dinner and watching Swamp People. Yes, the nurse will object, but perhaps I’ll do this in my butt-naked. On second thought, I really like this nurse so I’ll behave.