Doctors Arriving in Afternoon
The medical team from IBRF is coming to our home later this week to perform their periodic assessment on Ryan. I expect it to be much like the prior ones, where they run a qEEG, BIS monitoring, and other cognitive tests.
Beyond these evaluations, we spend a great deal of time reviewing Ryan’s medications, nutrition, therapy (don’t get me going!), and comprehensive plan-of-care. By late that afternoon, Sue and I are so mentally exhausted. Completely unable (or, unwilling) to put forth any effort to think coherently for anything longer than short bursts. For me, I settle in and watch something senseless, like “Swamp People” (so strange, it’s entertaining) instead of my usual Science Channel favorites.
3-D Brain Model
If I already posted the following, well, I forget a lot. Anyhow, Ryan’s 3-D digital brain model is next in line to process. Word is, they should begin on it this week. It’s an intricate assemblage of thousands of one millimeter MRI “slices” (from our fateful day at Johns Hopkins).
Having this completed will be a huge step in understanding what we’re up against, good or bad. Oftentimes, the most difficult thing is not knowing… except when knowing breaks our hearts.