When Ryan was in the hospital for pneumonia over holiday, he was put on seizure medication. Sue and I were highly skeptical if he did, in fact, need this. The Neurologist who prescribed this didn’t really take the time to learn Ryan’s case. He went off a ten minute clinical assessment while Ryan was in distress. Yet, it was worth seeing if Ryan’s behavior changed.It didn’t. So, we began weaning him several weeks ago. Yesterday he was off it completely. As I suspected, there was no observable adverse effects throughout the weaning period. The medicine has a six hour half-life i.e., 50% of the medicine is gone at 6 hours. 75% is gone at 12 hours, 87.5% is gone at 18 hours, and so on), so it was completely out of his system by yesterday afternoon.
The significance of removing him from the medication is it tends to to make people lethargic. This is desirable if someone is seizing. It quiets the brain. You can see why we were eager to see if Ryan could do without. We need his brain active.
What we are constantly faced with doctors who have oftentimes competing objectives. For example, one doctor wants to excite the brain while another wants to calm it. Early on, I had to step in and be the overseer of finding the best balance, for Ryan’s sake. It’s not without risk. Pulling the trigger on when to administer an antibiotic is mind-numbing. Sensing when to lower his dosage of baclofen is critical, else he potentially storms.
So far my instincts are correct. But, I can tell you I spent many a sleepless night watching him closely. Looking for the slightest change in his condition. Keeping all the measurements of probes attached to his body in clear view. I’m so tired of looking at LED displays.
I’m hoping to put out a video sometime today. I make no guarantees on the production quality. My thought is to just start recording and let it run, unedited. Since I’m flying solo on this, the camera will remain stationary and use a wide-angle.
I tried to do this yesterday to show a transfer from the HBOT to his chair. I swear I pushed the record button, but it didn’t start recording until I pushed it again (thinking I was stopping the recording). So, what I did record is how I appear when I’m utterly confused. It wasn’t pretty…